My Experience with Marfan Syndrome

A little bit ago, I wrote in my journal: “People say that things get better, but I don’t believe that they will. Nothing works. Nothing helps. It feels like nothing matters.” I preach on this page about hope and healing, but I was feeling so far away from these things. I have been hesitant to talk about my mental health as of late because I have been in such a dark place. I didn’t feel like it was authentic to post anything with an uplifting message when I genuinely had no ho

February is both Marfan Awareness Month and Eating Disorder Awareness Month. Marfan syndrome significantly affects how I view my body and plays a huge role in my eating disorder.   I have spent my entire life trying to shrink myself.  Since I was little, I’ve been acutely aware of the space I take up in this world. For as long as I can remember, people have commented on my height. From “Wow, how tall are you?” to “You should play basketball,” it seemed everyone had something

My parents have always said that I have Peter Pan syndrome. I have always been scared of growing up. I like to stay in the comfort of the...